Latest News

Keep up with the latest news on what is going on with the Spinal Muscular Atrophy community right here.

Feb 18, 20201 min read

UPDATE: CureSMA workgroup revises guidelines

CureSMA workgroup has revised their guidelines and is now recommending immediate treatment for SMA patients with 4 smn2 copies, as...

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Feb 15, 20201 min read

UPDATE (2/15/2020): Scholar Rock SRK-015

Latest update provided to us by Scholar Rock Late last month, SMA United reached out to Scholar Rock regarding their trials involving...

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Feb 5, 20201 min read

United Healthcare policies for SPINRAZA and ZOLGENSMA

United Healthcare policies for Spinraza and Zolgensma

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